Apologies for cross-posting
Dear colleagues,
We would like to invite you to submit abstract proposals to a panel on
"Awkward collaborations" in studying people with chronic and rare
diseases at the upcoming RAIMed "Mobilising Methods in Medical
Anthropology" conference (18-21 January, 2022, online)
Short Abstract
Research on chronic or rare diseases has been regarded a domain of the
biological and medical sciences. Drawing on the idea of "awkward
collaboration", this panel invites papers addressing efforts to work
with and/or around differences arising in collaborative research on
chronic and rare diseases.
Long Abstract
Among scientists and the general public, research on chronic and/or rare
diseases has been regarded a domain of the biological and medical
sciences. Genes, tissues, and blood samples seem to belong to
laboratories rather than constituting socio-political and economic
realities. The bodies of participants in clinical trials, babies
undergoing newborn screening or blood donors among others, are
foregrounded and scrutinized in order to obtain measurable, comparable,
and quantifiable data. Subjected to medicalizing concepts and practices,
patients and their families, members of patient advocacy groups, and
policy makers often appropriate the language rooted in biological and
medical sciences.
In this panel, we want to ask what happens when medical anthropologists
and other social scientists enter this picture of concept and data
creation and perpetuation as collaborators and researchers. Drawing on
the idea of "awkward collaboration" (Yates-Doerr 2019), this panel
invites papers that address ethical, conceptual, and methodological
efforts to work with and/or around differences arising in collaborative
research on chronic and rare diseases.
Please submit your abstract to Panel P07 via the conference website by
October 25.
https://www.therai.org.uk/conferences/mobilising-methods-in-medical-anthropology-2022/programme#10925
We look forward to your submissions.
Best regards,
Eva-Maria Knoll (Austrian Academy of Sciences) & Malgorzata Rajtar
(Polish Academy of Sciences)
--
Dr hab. Małgorzata Rajtar
Prof. IFiS/ Associate Professor
Instytut Filozofii i Socjologii PAN/ Institute of Philosophy &
Sociology, Polish Academy of Sciences
mrajtar@ifispan.edu.pl
Osrodek Badan Spolecznych nad Chorobami Rzadkimi/Rare Disease Social
Research Center
http://rdsrc.ifispan.pl/en/
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