*Apologies for cross-posting*
<br>
<br>Dear Colleagues,
<br>
<br>We would like to invite you to submit proposals to our panel “’Awkward
<br>collaborations’ in studying people with chronic and rare diseases” (P12)
<br>to be organized at the Mobilising Methods in Medical Anthropology
<br>conference will be held 3 to 4 September 2020 at the London School of
<br>Hygiene & Tropical Medicine.
<br>
<br>Abstract
<br>Among scientists and the general public, research on chronic and/or rare
<br>diseases has been regarded a domain of the biological and medical
<br>sciences. Genes, tissues, and blood samples seem to belong to
<br>laboratories rather than constituting socio-political and economic
<br>realities. The bodies of participants in clinical trials, babies
<br>undergoing newborn screening or blood donors among others, are
<br>foregrounded and scrutinized in order to obtain measurable, comparable,
<br>and quantifiable data. Subjected to medicalizing concepts and practices,
<br>patients and their families, members of patient advocacy groups, and
<br>policy makers often appropriate the language rooted in biological and
<br>medical sciences.
<br>
<br>In this panel, we want to ask what happens when medical anthropologists
<br>and other social scientists enter this picture of concept and data
<br>creation and perpetuation as collaborators and researchers. Drawing on
<br>the idea of “awkward collaboration” (Yates-Doerr 2019), this panel
<br>invites papers that address ethical, conceptual, and methodological
<br>efforts to work with and/or around differences arising in collaborative
<br>research on chronic and rare diseases.
<br>
<br>The Call for Papers closes on 12 April 2020.
<br>
<br>Proposals should consist of a paper title, a (very) short abstract of
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