Science & Technology Studies
EASST has launched its own international, peer reviewed, online journal Science & Technology Studies.
In response to the steady growth of our field EASST wishes to create a new strong international journal, which is also delivered as a membership benefit to members. The journal is a development of Science Studies, which has a 25 volume history of internationally peer-reviewed publications. The journal is under review to be included in social science citation index (SSCI) and has increased its number of issues to three in 2013 and will target four issues per year in the near future.
EASST members (and other subscribers) will have exclusive access to each new issue for a 4 month period. Members will receive an email with access details. All older content is open access – a principle of scientific publishing EASST wishes to endorse.
The journal has its own website at www.sciencetechnologystudies.org
Latest Issue: Science & Technology Studies: Volume 26 (2) 2013
- Guest Editorial
- Pernille Bjørn and Randi Markussen: Cyborg Heart: The Affective Apparatus of Bodily Production of ICD Patients (see abstract)
- Attila Bruni and Carlo Rizzi: Looking for Data in Diabetes Healthcare: Patient 2.0 and the Re-engineering of Clinical Encounters (see abstract)
- Henriette Langstrup, Louise Bagger Iversen, Signe Vind and Thomas Lunn Erstad: The Virtual Clinical Encounter: Emplacing Patient 2.0 in Emerging Care Infrastructures (see abstract)
- Annegrete Juul Nielsen and Casper Bruun Jensen: Travelling Frictions: Global Disease Self-Management, Local Comparisons and Emergent Patients (see abstract)
- Jeannette Pols: The Patient 2.Many: About Diseases that Remain and the Different Forms of Knowledge to Live with them (see abstract)
Cyborg Heart: The Affective Apparatus of Bodily Production of ICD Patients
Pernille Bjørn and Randi Markussen
We argue that a cyborg approach both emphasizes the complexity in treating patients with implantable cardioverter defibrillators (ICDs) attached to home monitoring devices, and makes it possible to decipher modern perspectives in the notion of ‘Patient 2.0’ and other representations of patients. We attempt to open up the notion of Patient 2.0 exemplified by ICD patients by drawing on the cyborg idea as developed by Donna Haraway as well as her understanding of science and the body as an apparatus of bodily production. We include the feminists Rosi Braidotti, Anne Balsamo, Geoff Bowker, and Leigh Star in discussing the cyborg, its infrastructures and affective potentials. We analyse modern imaginaries of remote monitoring as they are portrayed on the websites of the two largest manufacturers of ICD technologies, and based on an analysis of the apparatus of bodily production involved when patients visit a hospital to have their illness monitored we propose the analytical device cyborg heart to capture an affective apparatus of bodily production in the clinic and the idea of an enlarged sense of community as opposed to modern imaginaries of patient empowerment. Finally we discuss how the device cyborg heart differs from the notion logic of care.
Keywords: cyborg, patient, healthcare
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Looking for Data in Diabetes Healthcare: Patient 2.0 and the Re-engineering of Clinical Encounters
Attila Bruni and Carlo Rizzi
Diabetes is an interesting example of a healthcare sector where patients are responsible for producing and aggregating data about themselves, even if only for reporting details of their consultancies with specialists. This is valuable information because it orients the medical action taken on a specifi c patient and acts as the basis for aggregatelevel investigations, and for new therapies and diagnostic procedures. The reliability, truthfulness, and accuracy of such information is therefore of crucial importance for healthcare practitioners; accordingly, being able to count on ‘empowered’ patients is the best way to obtain reliable, detailed, and updated data. Drawing on the results of a broader research project on diabetes services in Italy, the paper wants to address an essential feature of Patient 2.0: his/her being part of a network of fragmented practices and information and, at the same time, his/her becoming the main point of convergence of clinical information, tools and practices. In doing so, we will underline the re-engineering of clinical encounters and the additional work required to a whole network of actors (doctors, nurses and the patient him/herself) in order to orchestrate data and information.
Keywords: diabetology, distributed and fragmented practice, doctor-patient interaction
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The Virtual Clinical Encounter: Emplacing Patient 2.0 in Emerging Care Infrastructures
Henriette Langstrup, Louise Bagger Iversen, Signe Vind and Thomas Lunn Erstad
Telemedical devices such as the Patient Suitcase for treating chronic heart failure patients at home have been suggested to foster new and empowered patients. In this paper we analyse to what extent the ‘virtual clinical encounters’ taking place through the Patient Suitcase can be said to have such effects. We find that new skills are developed for all actors involved and that the work involved in the consultation is largely shared, but the normative claims of an independent and self-managing ‘Patient 2.0’ are difficult to support. Rather than seeing this as a dismissal of the transformative effects of telemedicine, we will suggest the need to decentre the attention from the individual and include the place-making efforts and effects involved in emplacing telemedicine in the home. The technology does not move work, knowledge and power from one actor in the clinical encounter to another – rather it redistributes and transforms it among more actors and more places demanding continuous sharing of work, development of new skills and involvement of distant and at times unruly actors. This may provide more sober accounts of the ways in which telemedicine has implications for the kinds of patients we may find in contemporary healthcare and awareness of the more ambiguous relations between self, place and other in emerging care infrastructures.
Keywords: telemedicine, patient 2.0, the virtual clinical encounter
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Travelling Frictions: Global Disease Self-Management, Local Comparisons and Emergent Patients
Annegrete Juul Nielsen and Casper Bruun Jensen
Contemporary disease self-management programs aim to renegotiate the terms on which patients participate in their own health care. Though the notion of ‘patient 2.0’ has mainly been used to speak to patient empowerment through IT, we therefore propose to view self-management as eliciting “the patient” in a different shape. In this paper, we explore the embedded assumptions, imagined potentials and concrete practices of the Stanford Chronic Disease Self-Management Program (CDSMP), in order to understand how this program reconfigures a particular form of global patient. To analyse this process we consider the CDSMP as a traveling technology. First, we demonstrate that its successful globalization has been enabled by tying together specific forms of theorizing, evidence-basing, and scripting in a theory-methods package. Second, we show that the globalization of the program entails various forms of localization in the national health care setting of Denmark. In this context, we examine different kinds of efforts required to maintain the ‘global’ identity of the program even as it is ‘localized’. In particular, we show that the insertion of the program into Danish health care generates frictions. Such frictions are brought to light comparatively as Danish health care policy-makers, practitioners, consultants and chronic patients engage with and reflect upon the characteristics of the program. We argue that this analysis holds implications for ‘patient 2.0’, both as practical accomplishment and as a conceptual tool for social studies of medicine and health care.
Keywords: comparison, friction, globalization
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The Patient 2.Many: About Diseases that Remain and the Different Forms of Knowledge to Live with them
The emancipation of patients, their organisation and their participation in medical research and health care policy has expanded tremendously. With these successful attempts at participation, however, there is one problem that has so far hardly been articulated and seems to be unrecognized in conceptions of the Patient 2.0 as an informed and active patient. This is the assumption that there is only one kind of knowledge that matters to patients, and to which they can contribute: biomedical knowledge. The paper explores different kinds of knowledge that patients need to engage with in their life with chronic disease, and articulates a particular form of knowledge – patient knowledge – as a form of practical knowledge that patients use and develop in order to relate to medical knowledge and live their daily lives with disease. The analysis of a small webcam community of Dutch patients with an incurable lung disease will show that patients need to translate medical knowledge in order to make it useful to their daily lives, and need to coordinate health care aims with other aims in life. Rather than looking for ways to legitimate their knowledge, patients try out strategies that may work in specific situations, even if temporarily. The paper argues for a better support of the development of patient knowledge and the practices for developing it, rather than singularly equipping people with medical knowledge that is often oriented towards cure rather than towards living with a disease that will not go away.
Keywords: public participation in science, patient knowledge, patient organisations
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Previous Issues: Science & Technology Studies:
Volume 26 (1) 2013
Volume 25 (2) 2012